@Denise: That link from Duke does not go anywhere (I had looked earlier). There is NIAGADS site but the data appears to be mainly GWAS.
@Tobias may be from elsewhere but in the US it would be not possible to get the type of information @Tobias wants without a formally approved study application.
Chances of this sort of information being publicly available are small due to privacy concerns though there are other experts on the forum who may know more. You may need to apply for access to such information.