Any treatment or drugs for menkes diseqses
Hi,all,Maybe ask this question here is not a good choice,but I don't know where I can get some help. One of my friend told me her three months old son is diagnosed to have menkes disease.The boy have mutation c.3801G>C(E19 chrX:77296231 ATP7A).Copper Histidine may help him, but it is a kind of unstable compound.She can not buy it in the hospitals.I wonder whether there is any other drugs or treatment can help this disease or where can we buy some Copper Histidine ? Espeacially in china. Any help will be appricated.
Best regards.
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hua.peng1314
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Hello hua.peng1314!
We believe that this post does not fit the main topic of this site.
This isn't the place to ask about things like that, and in general the internet is probably not the place to look. You should try and find physicians who specialize in treating that disease.
For this reason we have closed your question. This allows us to keep the site focused on the topics that the community can help with.
If you disagree please tell us why in a reply below, we'll be happy to talk about it.
Cheers!